Hello wonderful people in my life,
Wow! This last couple of weeks have just been amazingly incredible.
So many awesome things are happening and day by day I am wishing I had more hours to get things done!
I was so happy with the article that came out three weekends ago in the Sunday Star Times in New Zealand. I never expected to get such a massive amount of space. Stoked beyond words. Loved seeing my hairless egg head on the home page on http://www.stuff.co.nz and being the lead story for a couple of hours was just fantastic. Thanks everyone for you messages of love and support as well as all the share and likes on Facebook and Twitter. http://www.stuff.co.nz/national/health/10663744/Around-the-world-with-Mr-Lumpy
My blog hits are on the up and it was exciting to see the stats over the last couple of weeks with both the article and Tedx. Working on getting the story more wide spread so watch this space.
My Tedx speech went really well and just wanted to say a massive thanks to Zehra, Jayesh, Kiri, Rob and Francie for their listening ears and feedback in the lead up to the event. I’m so glad that it all fell into place. 10 minutes is such a long time and it is a lot to memorise and it was a pretty big ask but I nailed it. The video will be out in a couple of weeks so will keep you all posted. The atmosphere was epic and when I spoke you could hear a pin drop. Unreal. Thanks to Megan, Gemma, Jess, Sarah and Vivienne for supporting me on the day. The other speakers were absolutely phenomenal and I got so much out of being there as well as speaking. Amazing humans.
Haha because I rehearsed it so much now everytime I walk to and from work or get into the shower my brain switches to “Say the speech” mode…..now there is no pressure I clearly know it by heart! Typical!
London catch ups have been great. Yum dinners with Gerda and Gemma. Brunch with Sarah, Ally, Michelle, Alyssa and Natasha. Celebrating Jackie’s upcoming wedding with some wonderful afternoon painting pottery and Spanish tapas. So delightful to see Megan and finally meet little Tristan. Was also fab this weekend to catch up with Jess and Sam who I went to fashion school with in Wellington – figured out that we have all know each other for 10 years! Time flies. Got to meet up with the lovely ladies at the NZ Business Women’s Network that is based here in London and was set up by Bronwen Horton 8 years ago. I did a talk for them at Sacred Cafe in Oxford Circus a couple of weeks back and am looking forward to the event at NZ House this week coming!
Last week I am headed over to Dublin to attend BCY2 Breast Cancer in Young Women conference. It was really interesting to see some of the research and data that is due to come out in the next couple of months and what things are being put in place to better support young woman with breast cancer. Was very interesting to see oncologists, radiologists and surgeons debate and speak about it too. Loved it when people stood up with controversial things to say! Meet some lovely ladies from YSC Young Survival Coilition which is a NGO based in New York. Looking forward to meeting up with them again soon. Was great to be in Dublin again but alas didn’t really have time to have a decent wander and look around. Hopefully another time.
This week I was off to Ireland again. This time to Northern Ireland to Belfast with Coppafeel to do some more Boob chat. We got to speak to a few people which was as always exciting. We were staying in the Titanic Quarter so it was pretty amazing to be surrounded by so much history and see where the great ship was made. We also got to have a look around the Titanic Museum which was awesome. The building is the height of the actual ship. Such a great exhibition to check out if you do ever make it to Belfast. Was pretty hideous weather though and I think we brought it back with us to London.
That was my hoorah with Coppafeel this week so just want to say a massive thank you to Sophie for all her hard work and dedication to those of us that are on the Boobette programme. Your support, attitude and dedication to the cause make life so fulfilling for all of us involved. Such an amazing organisation and can’t really put into words how the team have helped me with my current focus. More amazing humans!
Before October was up I had my last injection of Herceptin. Can’t believe how long it took to get through that. 15 months and 18 injections I am all done with that part my cancer treatment. It was glad to find out in the research for the article that was on Stuff that they are trialing Subcutaneous Herceptin in New Zealand. It is so much faster than getting it via a canulla or a port so hopefully this method is more accessible soon for women back home.
I am very happy to announce that my genetic test results came back clear. I am not a carrier of the BRCA breast cancer genes. Its such wonderful news however in saying that its pretty clear from my perspective that with no real family history and no genetic reasoning I still managed to get hit with the breast cancer stick. I think its really important to again highlight the fact this disease doesn’t discriminate and we all need to be more mindful and aware of what’s going on in our bodies. I’m not only referring to breast cancer either there are so many other illnesses and diseases to be mindful of. If you do however have any family history in any illness it is in some ways “better the devil you know, than the devil you don’t” ignorance is certainly not bliss with this disease so please don’t be scared and chat to your GP.
Adding to that about a month ago I found a small lump on the same side as my original cancer. Just out from my sentinel node scar there was a hard pea sized lump that was a bit itchy. When it didn’t go away after a week I ended up getting it checked out. It turned out to be what is called a sebaceous cyst – fatty tissue and the results came back inconclusive. As you can imagine I had to go through the whole process all over again which was’nt fun, but I was pushed through the system really quickly and was given peace of mind quite fast. The cyst was in the skin layers so I was’nt able to have a core biopsy rather a fine needle aspiration to get some tissue samples. this was only done due to my history as the scan did not show up anything suspicious. Even though it’s nothing my surgeon still wants to remove it as these cysts can be prone to infection especially with the amount of surgical procedures and radiation I have had in the area. So there will be one more sexy hospital gown photo in a couple of weeks haha.
Well I am now on the final countdown of my time here in London. Can’t believe in two weeks I will be leaving this city and heading back to New Zealand via the USA. London has been an amazing home to me the past 21 months and as I prepare to leave I reflect on a time that has gone so fast but has certainly been the most challenging of my life. When happiness was my best friend and the nightmare of getting cancer decided to come into my world I did not know that I would find such a bright light at the end of that dark tunnel. London in so many ways has saved my life and put me on an amazing path to change not only my own life but the lives of others. I still did what I came here for and then some, as I leave I know this is a place I will come back to – not to live, but to visit for sure – I am still planning on meeting the Queen so Buckingham Palace would be the place for that of course.
I leave London on the 2nd of December and fly to New York. Where I will catch up with my lovely Irish friend Jewels who I lived with in Auckland a few years back. looking forward to seeing as many sights as possible. Then it will be onto Washington DC to see Maria and Peter who I met back in 2011 when Leah and I did our trip to South East Asia. Then across to San Francisco before going through LA and arriving back in New Zealand on the 17th of December just in time for Xmas.
Looking forward to summer and catching up with everyone on the other side!