NZ is where MY heart is

Hello wonderful people in my life,

I am sure every time I write an update I am amazed at how fast the time has passed since the last one. This last month is no exception and as usual I have managed to cram a lot in!

Hope you are all well and wherever you may be in the world looking forward to the festive season.

The aftermath of my Tedx talk was pretty amazing and like all of you I am on the edge of my seat waiting for the video to be released. I am not sure what exactly is going on and why it is taking so long but I know it will be released soon so will post it up as soon as I have the links. Such an amazing experience and still buzzing from being on such an awesome platform to deliver such an important message. Pretty excited to see what other speaking opportunities come from my talk once it is released.

Surgery went well and results came back all clear. I had the cyst removed on Thursday 27th of November and the results came back clear. It was so odd having surgery and being awake in the room I never get to see because I always get put to sleep before I go through those “double doors”. Such an interesting experience to be awake!

Had to get a cyst removed, almost fell off the bed! November, 2014

Had to get a cyst removed, almost fell off the bed! November, 2014

Leaving London was something I was rather anxious about. I guess because it was in so many ways my haven, the place I felt looked after and safe. I knew where to go and who to see if I needed to and I was always taken seriously. It was like leaving opened me up to uncertainty and that worried me. I think too when you have been in a place that has looked after you so well it’s hard to leave. London defiantly has a part of my heart and I know that one day I will be back there for a visit.

It was so great to have my leaving drinks at Be At One – an awesome cocktail bar and say goodbye to everyone that came along and made my London experience what it was. Thanks to those of you who were able to come along.

With Charlotte, Sarah and JT. Last weekend in London. November, 2014

With Charlotte, Sarah and JT. Last weekend in London. November, 2014

The day before I left I spent some time at London Oratory and was able to see my students who I taught last year. It was really nice to see them all and I think they were pretty happy to see me. So nice to say goodbye after having to leave them this time last year.

Working with NHS England was a fantastic experience. Such a wonderful group of people. The event Future of Health went really well and it was amazing to be around people who have experienced long term health conditions and want to make a change for those in the same predicament in the future. There are a lot of fantastic things happening in the UK in regards to patient centered care and improving systems of care for people like myself who may need on going support and medical attention. It was great the last weekend I was in London to be involved with Macmillian’s Capital C programme that had around 40 cancer sufferers and survivors of all ages come together to discuss how cancer services in London could be improved for the future. Macmillian is the biggest cancer support charity in the UK so this was something great to be involved in and the start of something really great for the people in that city. Macmilllian is trying to focus resources on regional access rather than doing more things that cover the whole of the UK / nationwide.

Discussing how to better improve cancer services in London. November, 2014

Discussing how to better improve cancer services in London. November, 2014

Thanks so much to Matt and Megan for having me stay with them in what was also their last couple of weeks in London. Was so wonderful to spend time with friends from home and meet their gorgeous boy Tristan. Super cute!

New York was the first stop on my journey back to New Zealand where I stayed with my Irish lovely Jewels in Brooklyn. I lived with Jewels in Auckland back in 2009 so we go way back! Did plenty of sightseeing and ticked off Wall Street and the Stock Exchange, took the Staten Island Ferry and checked out Lady Liberty and had great views of Manhattan from the ferry. Made it to the Broadway Show Avenue Q which was hilarious, keen to see it again one day as I was asleep a good portion of the second half! The time difference killed me! The World Trade Centre Memorial was beautiful and the Freedom Tower is a poignant example of strength and resilience of the American people. Brooklyn Bridge at night was incredible and the lights of Manhattan were stunning. Walking down 5th Avenue was pretty surreal as I have seen it in movies so much. So iconic! Was pretty cool to wander though Central Park too – it is so huge! After meeting the team of YSC – Young Survival Coalition in Dublin at the Breast Cancer in Young Women Conference I was able to visit there offices in New York. Was great to see Megan and meet up with some other members of their team. I feel like it’s really important for me to make connections with other organisations in different countries so Kiwi’s can benefit from the information that is out there about Breast Cancer. Awesome to reconnect with Kathryn (a fellow Breast cancer survivor) after also meeting in Dublin. New York in the rain and missioning it around China Town and SOHO to find souvenirs, thanks for your help!

Checking out NYC gems. December, 2014

Checking out NYC gems. December, 2014

On the Brooklyn Bridge with the lights of Manhattan behind us. December, 2014

With Jewels on the Brooklyn Bridge with the lights of Manhattan behind us. December, 2014

Took a trip out to New Jersey to catch up with Rowan and Linda who I house and dog sat for in Sydney on my way to the UK so it seemed fitting to see them on my way back. Was great to catch up with them and meet there little boy Peter. Was cool to see surburban America and even got to see some awesome houses covered in Xmas lights.

Washington DC can be explained as a giant museum. So much history and plenty to see and do. Was wonderful to see Maria and Peter who I travelled South East Asia with at Xmas and New Years 2011/2012. The monuments and memorials were so majestic and amazing, so much history. The Lincoln Memorial and the World War Two Memorial were incredible. Really enjoyed the views from a top the Washington Monument and even got to see the Pentagon – yes total highlight thank you X Men and Men In Black for that. The White House is beautiful but i was under whelmed by it’s size. Very small! Looks gigantic on TV! Haha. When I was leaving DC it was starting to snow so I think I left at the right time. Was a bit worried however as a giant storm happened to be brewing on the west coast of the US and lots of flights were cancelled. Got there in the end though!

Amazing views of Washington DC from atop the Washington Monument. Lincoln and WW2 Memorials. December, 2014

Amazing views of Washington DC from atop the Washington Monument. Lincoln and WW2 Memorials. December, 2014

Checking out the Lincoln Memorial with my wonderful hosts Maria and Peter. December, 2014

Checking out the Lincoln Memorial with my wonderful hosts Maria and Peter. December, 2014

San Francisco was the best place to end my two year overseas experience. The rain happened to clear and I got three great days of fabulous weather. It is such an easy city to wander around and there is so much to see and do. Chinatown is amazing and has so many shops, did wish I had a bigger bag to bring everyone back a waving cat. Alcatraz was interesting and the audio guide tour of the Cell Block was fascinating. If you ever get the opportunity to go it is a great experience and everything is well preserved and looked after. The views of the city from the ferry of the city and the rest of the bay are beautiful. Didn’t get enough time at Muir Woods – the Redwood forest that is home to some rather tall trees and Saulsilito due to issues with the company that was running the tour I was on but would defiantly recommend going there if you were to ever visit San Fransisco. The Golden Gate Bridge was epic and feels as if it holds the tow sides of the bay together. Height Ashbury is a very eclectic area much like Camden Town in London and the old victorian houses are absolutely stunning the famous Painted Ladies no exception. Even made it out to the University of California campus at Berkeley. The campus is really traditional and so well looked after and even though we only got to see it at night the study halls were full of students studying for their final exams. You could hear a pin drop. Was so wonderful to catch up with with RJ who is a good friend of Elle and Rob’s who is a San Fran local and drove me around the city at night. Fisherman’s Wharf for dinner, wandering around Pier 39 and seeing the famous seals, driving down Lombard street the world’s crookedest street and checking out the Palace of Fine Art’s. It was great to hang out with a fellow Kiwi Maxine on the last day of my OE. So thanks to Maxine for showing me around. Such an awesome day. It is really important for me to speak to and meet people from organisation’s that are promoting awareness and advocating for Breast Cancer. I was lucky enough to meet up with Shaney Jo Darden from Keep A Breast, an awareness charity based in LA. We caught up for breakfast the day I left San Fran. It is always amazing to meet passionate people who want to make a difference and Shaney has been doing it for the past 15 years. Inspired!

Stunning views! December, 2014

Stunning views! December, 2014

The flight home was pretty straightforward. Flew from San Fran to LA, then LA to Nadi, Fiji then to Auckland. Was interesting getting home to pouring rain and grey skies! Felt like I was still in London. Was so great getting straight back into things. I didn’t realise I was truly at home until I drove into the city last Thursday. It’s so nice to know where you are going, see people that you have not seen for two years and things just click back into place like you last saw each other yesterday. I think the one thing I was most worried about leaving London was that I was going back into the unknown. London was like a safe haven and a security blanket. I knew where I had to go, what to do if something happened and that I would be taken seriously very quickly if something was wrong. I think I was incredibly fourtunate and lucky to have had the care and support I had in London and it was all down to the people who were in my medical team. So amazing to know such remarkable healthcare professionals. Thank you so much Dr Peng Tan, Vivienne Maidens, Dr Tim Crook, Dr Ros Crooks, Lucy Mavriano and my wonderful chemo nurses Nse, Pat, Renata and Helen. So blessed. I went to the doctor the day after I got home so waiting to be referred to an oncologist here in Auckland in order to get into the NZ system. It is so good to be back! Thanks also to everyone who I have seen since I arrived home, all those who came to my welcome home get together and a massive thanks to Maya, Violet and Jules for picking me up from the airport and having me to stay with them while I get my life back in order. Can’t believe it is two years since I left New Zealand, it is like I have lived a life time in such a short amount of time. It has just gone a year since I completed chemo and I just had my first haircut in 16 months. Pretty glad to be back to blonde. I think I fully took my hair for granted and the feeling of someone washing your hair and the clean feeling of “new fur”. So good. Can’t believe how fast a year has gone. Very glad to be in a warmer climate with hair on my head!

Welcome home dinner with Debbie, Bridget, Zoe and Claire. December, 2014

Welcome home dinner with Debbie, Bridget, Zoe and Claire. December, 2014

Rocking the chemo curls and mullet. 1 year of growth. December 20th, 2014

Rocking the chemo curls and mullet. 1 year of growth. December 20th, 2014

First haircut in 16 months. Back to the blonde! December, 2014

First haircut in 16 months. Back to the blonde! December, 2014

Oh New Zealand how I have missed you. Fresh air, stunning scenery, amazing tasting food, no limescale in my cup of tea, people saying hello on the street and drivers who acknowledge you with a friendly wave when you give way. We have such a slice of paradise here in this beautiful country and not being here for two years has made me really realise how lucky we are.

Heading home for Xmas down to the batch at Turakina so looking forward to seeing the family and spending a bit of time with no reception. New Years will be fun and will be great to see hang out with some of the lovelies from London – Haley, Heather, Katrina and really looking forward to seeing Kate (Wifey) after her gigantic trip through Canada, Central and South America which started back in September.

I am really looking forward to the new year. I think 2015 has some amazing things lined up for me so can’t wait to see what is in store for me. There are a couple of things in the pipeline but I am going to keep them on the down low until the new year so watch this space! More trips and more life saving and boob work is coming! Pumped.

On that note I best stop typing. I am trying to be as brief as possible and hopefully from now on life will be a bit calmer in regards to travel and sightseeing so I will have a bit less to write about. I am really looking forward to having more rest in my life and taking things a bit more quietly. Glad to be home and can’t wait to catch up with those of you in New Zealand or those of you soon to visit.

Wow what a year. Wishing you all a very Merry Xmas and a wonderful New Year. Remember to look after each other and show gratitude to those around you. This time of year for me is about showing appreciation to the people who mean the most to you in life. It doesn’t take much to have an attitude of gratitude and it can really spark a light in someone you really care for.

Thank you all so much for your kind words of support, love and advice throughout this year. I feel so rich to have you all in my world. Be well and sending you all my love for the festive season and best wishes for the year to come, I know it is going to be the best yet.

Love you all,

Jess x

Awesome happenings!

Hey wonderful people in my life,

Hope this mini updateΒ finds you all well.

Wanted to share some cool happenings that have been going on!

My speech for Tedx is now finalised and I am practising and listening to myself several times a day.
I have just started talking at myself in front of the mirror haha.
Slightly awkward but so good for remembering what I should be saying.

Very excited and only have two weeks until the actual talk!

I am really enjoying my new job at NHS England.
Am getting to work with some awesome people who are decision makers in the organisation so that has been great and a bit of an eye opener.
Got to see the CEO speak this afternoon so that was brilliant.
Such an awesome speech regarding the current changes within NHS England.

I have recently written a blog post for the event I am working on so please check it out. It is all about my patient experience – http://www.futureofhealth.co.uk/blogs

Here is an interview I did a couple of weeks back in lead up to my Tedx Talk. Thought you might like a listen πŸ™‚

I also recently did a blog for Tedx. Click the link then scroll down to the 8th of October to read my post: http://www.tedxsquaremile.com/blog

In other good news my blog ‘My Travelling Life’ which is on WordPress and can be located by going to http://www.jessweller.com was recently shared on an list website called Listly.
I am currently at number 143 on this list of ‘Best Breast Cancer Blogs’ which is just awesome and my blog hits have skyrocketed this week. I have had over 2100 views in total since starting it last July and have had over 1000 hits since making it public around June this year. Spreading awareness.

In even better news…..I will be in the news in New Zealand on Sunday.
Make sure you get a copy of the Sunday Star Times and keep an eye out on http://www.stuff.co.nz because my face will be there somewhere! Please do put me on your fridge haha.

Wishing you all a happy weekend πŸ™‚

Jess x

So many opportunities!

Hello wonderful people in my life,

How does this time of month come around so quickly?! How did I manage to do so much in such a small amount of time?! How busy are the next couple of months going to be?! CRAZY!
It is getting cold quite rapidly here in London and it’s been really rainy. I pulled my beanie out this week! Brrrrrrr!
September came and went. Kate left me and is going through Canada, the USA and Central / South America before heading back to NZ. I got to cast a special vote in the NZ Elections my first visit to the NZ embassy here in London.

See you in NZ Wifey! x

See you in NZ Wifey! x

Off to NZ House in London to vote in this years elections

Off to NZ House in London to vote in this years elections

The afterglow of traveling over summer lasted ages. I think it was due to the fact I discovered my fitness was coming back and my fuel tank was filling back up. It’s also been great that I’ve been house-sitting and without the financial pressure of paying rent I have been able to rest a lot and work less. I think since the beginning of September I have worked five and a half days. I just don’t want to be a teacher right now. Not here in London anyway. Looking back at this year it would be a fair observation to say that I have struggled with fatigue. I think I had more energy going through treatment and at the moment it is a case of taking it day by day and not running my energy stores to far down. Getting there slowly.

A couple of months back I sent my CV out to about 10 cancer charities to see if I could get any kind of paid work or some kind of volunteering. Most of them replied and it was cool to get offered more volunteer based work about London. What eventually came out of it though was a role with NHS England. So I have a two month contract that takes me right up to the end of my visa. I am working on an event called Future of Health which aims to better support people with long term conditions. My role involves liaising with patients with long term conditions to get them involved and be the connection between them and the conference team. I have just done a blog for this site to so if you want a read do click the blog tab – http://www.futureofhealth.co.uk

I have been doing a lot more volunteer work for Coppafeel! and that’s been so enjoyable. Helped out at an event a couple of weekends ago that was about a campaign called What Normal Feels Like. We had a pop up shop in Brick Lane / Shoreditch that was set up as a gallery. The campaign was a team effort between photographer Rankin and Coppafeel in which healthy bare breasts were for the first time ever displayed on billboards around the UK. When we talk about our boobs we don’t think about how they feel, we talk about the size and shape so this campaign was all about getting us better acquainted with a different vocabulary when we do have boob chat and thinking more about the way they feel the big question being what does normal feel like for you? Talking to people on the street was interesting and like any thing not many people want to stop to listen to what you have to say. I think I definitely changed the thinking in some people and that was why I was there. Thanks to Sarah and Bridget for popping in!
http://coppafeel.org/what-we-do/whatnormalfeelslike

With Sarah and Bridget at #whatnormalfeelslike popup in Bricklane. London, September 2014.

With Sarah and Bridget at #whatnormalfeelslikepopup in Bricklane. London, September 2014.

One young lady walked passed when it was pretty quiet. She was on her phone and when she spoke to me I noticed she was from New Zealand – strong accent. We had a quick chat about visa’s and she was also on a two year to work live and travel. I told her about the campaign and when I didn’t spark much interest I asked if she was in a hurry she answered yes. I asked her how old she was. 27. Last year I was 27 when I had been here for four months like you living the dream and I was diagnosed with breast cancer. With every new person I tell there is a different reaction but the most of those who listen take something away and I know I have made them really think about their bodies. That young lady said “You just made me stop and think”. It was a moment of appreciation when tears began to well in her eyes and she said I have to give you a hug. I nearly lost it too because I know I had brought breast awareness to the forefront of her mind. It’s such a soul satisfaction to pass on the knowledge I have about this disease. Looking forward to a few more talks in the coming weeks and heading to Belfast, Ireland to do some talks as Coppafeel! is expanding and making their move to the Emerald Isle. Looking forward to be apart of that!

As most of you are probably aware I have been asked to do a TED Talk. TED (Technology, Education and Design) is a platform for public speaking and sharing ideas. TED’s slogan “Ideas worth spreading” is something many inspiring people aim to do and with a massive internet following and many talks having millions of views its a huge once in a life time opportunity to have been offered. I think we all have a story to share and when I talk about my experience in regards to breast cancer awareness I know one day I am going to save someone’s life and that gives me a powerful sence of purpose. I know I may have already done this several times. Looking after your boobs is certainly an idea worth spreading. Check put my recent blog post for my talk on the TEDx website – http://www.tedxsquaremile.com/blog – you may need to scroll down a bit. I also have a profile on the website too it you are yet to check it out! http://www.tedxsquaremile.com/speakers. For those of you unable to attend the talk will be posted online so I will make sure I keep you all updated as to when it is released.

I still can’t believe we did it! Almost two weeks ago Sarah, Kirsten, Emily and myself did the Cancer Research UK Shine Marathon Walk in aide of research for Breast Cancer and we even managed to do the whole walk wearing giant boob costumes! It took us a very long 11 hours! We started at 10:15pm on Saturday night and finished around 9am on Sunday morning. I don’t think I have ever done something so difficult in my life. 42km or 26.6miles is a really long way. I feel like I had literally walked my feet off by the time we crossed the finish line. The last couple of hours we walked past so many people limping, walking in jandals/flip flops and their socks. The finish line was basically a room filled with broken humans. By the time we managed to get home it was straight into a cold water bath, shower and then into bed in which we passed out and fell into a 7 hour coma. Upon reflection it was a mammoth feat to achieve and it was a lot of fun. Would I do it again? Probably not and still do not understand how people run that distance?! Ridiculous. Big thanks to the girls for doing it with me!!! Always wonderful to see Emily who came down from Glasgow and Kristen who travelled from Cambridge. My fundraising page is currently still open if you wish to support an amazing cause please do donate!
http://www.justgiving.com/wellerjess2014

At the start line! Shine Marathon. London, September, 2014

At the start line! Shine Marathon. London, September, 2014

At the half way point...the realisation that you have to walk the amount you just walked again. Pain! With Emily, Sarah and Kirsten. September, 2014

At the half way point…the realisation that you have to walk the amount you just walked again. Pain! With Emily, Sarah and Kirsten. September, 2014

Nap time and still at least 2 hours from the finish line. MORE PAIN. Shine Marathon, London, September 2014

Nap time and still at least 2 hours from the finish line. MORE PAIN. Shine Marathon, London, September 2014

Last week I had my fifth and final surgery in my cancer journey (hopefully the last one) to remove my Portocath. It was another easy straightforward procedure and apart from feeling a bit drunk from the anesthetic afterwards I have been feeling pretty well. Here is a pic of me and my magician surgeon Mr Tan. Glad that its out but I do have to admit that I am glad I had it in for my treatment. Just before I went into theater I had four medical professionals trying to find veins in my arms so that I could be put to sleep. My veins seems to run away when they know needles are going to be involved. Going through that with chemo and Herceptin would have been horrfic. Only one round of Herceptin left then I am all done. Hard to believe that I started this journey almost 18 months ago. I can actually see the light at the end of the tunnel. So surreal.

This surgical magician did four of the five surgeries i have had since I started my cancer journey.

This surgical magician did four of the five surgeries I have had since I started my cancer journey.

Got to have a silly photo in my hospital gown! Port Surgery October, 2014

Got to have a silly photo in my hospital gown! Port Surgery October, 2014

It’s been great catching up with people who are visiting London. April and Andy were over from NZ and we had a great time lunching at Shepherds Bush, wandering through Hyde Park then stuffing our faces with ice cream at the Fortnum and Mason parlour. Such an amazing London institution and a must see if you are ever in town. So close to Buckingham Palace. Had a lovely rainy Saturday morning catch up with Kyle and Jess at Borough Market. Awesome catch up’s with Ed in London too. Trying to tick off some more musicals! Saw a show called Forbidden Broadway which is basically a spoof of all the musicals that feature on the West End / Broadway. Defiantly worth a look if you have seen a lot of musicals! Gave the Book of Morman lottery a go but to no avail. Wonderful to see Lauren who I met in Rome for brunch today and looking forward to seeing Rob tonight. I love being popular! and LOVE London catch up’s!

Love my London catch up's. With Andy and April in Hyde Park. September, 2014

Love my London catch up’s. With Andy and April in Hyde Park. September, 2014

So October will be a busy month leading up to an even busier month in November. With the BCY2 Breast cancer in Young Women Conference in Dublin, my TED Talk, I am off to Belfast to do talks with Coppafeel! All in between working and hospital appointments. Fun and exciting times are ahead.

Hope this finds you all well,

Jess xxx